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From: a evans
Date: 28 Oct 2005
Time: 03:59:00
Remote Name: 152.163.100.132
We took my daughter to a pediatric neurologist at Vanderbilt Children's Hospital in Nashville (where we live) for the EEG and the results came back normal. He felt that it was most likely a form of "stereotypie," which he defined as a stereotyped movement behavior recognized as unusual but without long term risks or association, although they can continue indefinitely. His diagnosis was pretty vague but he felt what she experienced wasn't really a seizure based on the normal EEG, which ruled out several severe conditions. The doctor said as long as the episodes don't change or happen while she's in a deep sleep, or become uninterruptible, that further evaluation wasn't necessary. We were extremely glad to have several scenarios ruled out by the results, but she has continued to have these episodes, and as a mother watching them, it's still pretty scary. And frustrating that her doctors can't tell us exactly what's causing them. There has to be a biological explanation. For now, I'm watching her to make sure nothing changes and talking to other mothers. Appearantly, this is fairly common. I've talked to several people whose children experienced the same symptoms and "outgrew" them. I hope this helps, and if you have any concerns about what you're seeing, go to your baby's doctor again. Or a different one. It's frustrating when doctors discount what you're trying to tell them. Who knows our babies better than us? I think they forget that sometimes. Good luck!