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From: Mary Perkins
Time: 12:40:23 AM
Remote Name: 126.96.36.199
Primary Vs Secondary Blepharospasm / Brain-damage-induced Vs Non-brain-damage-induced Eyelid-twitching / Eye-blinking Please refer to the following medical explanations entitled 'Primary Vs Secondary Blepharospasm' which is actually an excerpt of my reply to the other party and I hope that the information given will be useful to the intended readers. Thank you. Quotation : " 'However, from this posting I have much more clearly understood that your blepharospasm symptoms are a form of secondary blepharospasm, not primary or conventional BEB. BEB is assumed to be a by-product of malfunctioning in the basal ganglia area of the brain, with no known specific cause, but essentially representing a breakdown in the electrical functioning of the brain that occurs at nature's whim, and for which some small proportion of the general population is vulnerable.' My Reply : To a very great extent, I do agree with your medical reasoning. In such critical chronic cases of degenerative neurological / nervous disorders which involve permanent damages of the cerebrum / Celebral Cortex and Central nervous systems /other brain-related damages as Chorea, Celebral Palsy, Multiple Sclerosis, Alzheimers / Senile Dementia, Bovine Spongiform Encephalopathy (BSE) / Mad cow disease, Parkinsonism, chronic epilepsy/ brain seizures / etc for which there are permanent losses of brain masses / sensory / motor neurons and what you have described as 'malfunctioning in the basal ganglia area of the brain', no 100 % definite cure would be available (in whatsoever cases) in such scenarios due to the underlying fact that neurons / nerve fibres / brain cells cannot regenerate themselves in that when they are totally damaged / destroyed / lost, they are gone forever. As such, in the cases described above there would hardly be any nerve impulses that would be able to be smoothly and perfectly sent from the brain to direct / result in any bodily movements / motions in the naturally smooth and totally unimpeded ways in the cases as explained above. Quotation : 'As a skeptic about alternative medicines, I would not expect solutions to BEB from say acupuncture, but I am more open the idea of alternative solutions like acupuncture being helpful in secondary blepharospasm, as in your case of Risperdal induced Tardive Dyskinesia.' My Reply : However, in the case of so-called 'secondary blepharospasm' that you have mentioned in your reply, such kind of disorder in most cases actually doesn't involve direct damages of / to the brains / central nervous systems and permanent damages / losses of the motor/ sensory neurons like the chronic cases I have explained above. In such a connection, if the neurons / nerve cells (the cells that are specialized to conduct nerve impulses from the brain to conduct / control the human body movements/motions) actually do not suffer any serious / permanent / irrepairable damages but instead have just their normal functionings of conducting such nerve impulses from the brain disturbed by the other substances that antagonize the neurotransmitters (such as dopamine / serotonin / acetylcholine) comprised in them (the neurons / nerve cells) , a cure from acupuncture to get rid of such neurotransmitter-blocking/disturbing substances (that antagonize the neurotransmitter ) from the related peripheral nerves around the muscles would be available (such as the one I have suggested for Tardive Dyskinesia-induced eyelid-twitching). And please bear in mind that as long as the neurons / nerve fibres/ brain cells / central nervous system (which is made up mainly of the brain and spinal cord) do not suffer any damages/disorders, neurotransmitters (the key elements of neurons) can always be renewed, generated and secreted (by the neurons). In fact among the eyelid-twitching / eye-blinkng cases that I have observed in my real life and the ones aired over the internet, I just find out and deduce from such related posts that lots of such people would tend to have this so-called 'secondary blepharospasm' problem (otherwise they would have faced great cognitive difficulties to get their problems articulately accounted over the internet and at the same time, suffered from other far more serious neurological complications apart from the blepharospasm alone). Besides, for most of the neurodegenerative disorders that involve direct serious damages to / in the brain, celebral cortex, spinal cord, neurons / nerve fibers such as the ones that I have mentioned earlier as above, they are in most cases actually verifiable and observable through medical means of CT Scanning and MRI examinations. Whereas, in the case of bodily chemical imbalances which is caused mainly by the interruptions to the normal impulse-relaying activities of neurotransmitters in the neurons (which is not damaged / destroyed), such a medical phenomenon / disorder would actually by no means could be revealed / observable / diagnosed through such medical scanning examinations alone. As a matter of fact, based on my experience of getting my Tardive Dyskinesia-induced eyelid-twitching / eye-blinking totally cured, I just found out that there are simply certain areas for which the western medical Science appear to be rather inadequate. (For example, such technologies of dealing effectively and precisely with the purely peripheral-nerves-related muscle disorders simply are not available in this mainstream medical field - and that's why my earlier attempts to search for a cure for my eye-sickness from the formal western medications turn out to be futile / hardly yields any permanent and satisfactory results). Hence, from the viewpoint of a patient who is concerned about nothing else but just for an effective cure for such an annoying sickness, I'm just in an opinion that the suggested acupuncture cure, which have empirically provided great curative benefits to me and other people to whom I have recommended it both in my real life and through the emails, is a more practical and realistic approach of dealing with such a problem. Quotation : 'I am sorry to hear that the medical profession in your country seems ignorant of the side effects of some of these drugs. We have discussed elsewhere on the board this lack of awareness more generally in the medical profession, so you are less alone in this than you may think, unfortunately. So I think that the main message we should take from your notes, is to keep ourselves thoroughly aware of which drugs are known to be dangerous in terms of inducing things like blepharospasm. The BEBRF blue brochure lists these, and they have also been listed on this site (see the link below). The only constructive suggestion I can make is for us all to ensure our own doctors of whatever specialty are aware of these drugs and their side-effects, which we can do by informing them, perhaps by sending them the BEBRF brochure. Thank you for once again warning us of the dangers of certain anti-psychotic drugs, and glad to hear that your symptoms are relieved by acupuncture.' My Reply : Actually as a social worker working for the healthcare and benefits of the others, I do hope that such a saddening scenario of the various exploitations of basic medical rights that are denied to certain 'underprivileged' individuals due to 'imperfect information', ignorance on the part of the patients, geographical differences (modern vs less-developed nations), deliberate exploitation by certain profit-driven individuals who have lesser or no regard at all for medical ethics and human lives etc, would come to an end one day. In this regard, I do hope that such relevant regulatory bodies as Food and Drug Administration (FDA) etc and other charity organizations as well as the kind and benevolent individuals elsewhere all around the world would be kind and generous enough to extend their invaluable and prodigious supports in any forms whatsoever for such a humanitarian cause. Thank you.